Parenting After Infant Congenital Heart Defect Diagnosis

Completed

Conditions studied: Congenital Heart Disease

In brief

The purpose of this research study is to learn about parents' experiences following diagnosis of a fetal/neonatal Congenital Heart Defect (CHD). Nurses, physicians, and other health-care clinicians will benefit from an improved understanding of what the diagnosis means to parents and what they expect concerning the infant, being a parent, and caregiving tasks and responsibilities. The investigators expect that the knowledge gained will increase clinicians' ability to respond to parents' needs.

Key facts

Study ID

NCT01503307

Run by

Medical College of Wisconsin

People needed

23

Starts

2009-01-01

Expected to finish

2016-07-01

Last updated by the study team

2019-10-25

Who can join

Age: any, up to 0. Sex: any. Healthy volunteers: not accepted.

You may not qualify if…

• no CHD diagnosis

Where it is running

• University of Wisconsin Madison — Madison, Wisconsin, United States
• Children's Hospital of Wisconsin — Milwaukee, Wisconsin, United States

Full record on ClinicalTrials.gov

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