National Lymphangioleiomyomatosis Registry, France

Recruiting now

Conditions studied: Lymphangioleiomyomatosis

In brief

RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and information concerning the timing and modalities of diagnosis. Based on the registry, we will set up a prospective cohort of patients. The database will include detailed medical information, particularly regarding progression of the respiratory function.

Key facts

Study ID

NCT01484236

Run by

Vincent COTTIN

People needed

200

Starts

2012-01-01

Expected to finish

2026-12-01

Last updated by the study team

2025-03-13

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous sclerosis.
• patients diagnosed or hospitalized or seen in consultation since 01/01/2008

You may not qualify if…

• None

Where it is running

• Hôpital Louis Pradel — Lyon, France (enrolling)

Full record on ClinicalTrials.gov

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