Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome
Running, not enrolling
Conditions studied: Sturge-Weber Syndrome
In brief
This study has three aims that hope to expand the knowledge on the cause of Sturge-Weber Syndrome (SWS) and improve clinical care of Sturge-Weber Syndrome patients.
Key facts
- Study ID
- NCT01425944
- Run by
- Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
- People needed
- 600
- Starts
- 2010-09-01
- Expected to finish
- 2027-02-09
- Last updated by the study team
- 2026-03-02
Who can join
Age: 0 and older. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- For Aim 1:
- For main sample:
- Sturge-Weber syndrome
- Diagnosed brain Involvement
- For Control:
- Family member of participating SWS patient
- For OCT:
- Sturge-Weber syndrome eye involvement
- For Aim 2:
- Sturge-Weber syndrome
- Diagnosed Brain Involvement
- For Aim 3:
- Sturge-Weber syndrome
- Diagnosed brain Involvement
- Port-Wine Stain in V1 and/or V2 areas of face.
You may not qualify if…
- Not Diagnosed with Sturge-Weber syndrome with brain Involvement (or eye involvement for OCT)
- For Aim 1:
- Family member must not have certain medical conditions. A list will be provided before consent is given.
- For Aim 3:
- Not Diagnosed with Sturge-Weber syndrome with brain Involvement
- No Port-Wine Stain
Where it is running
- Kennedy Krieger Institute — Baltimore, Maryland, United States
- Wayne State University/Children's Hospital of Michigan — Detroit, Michigan, United States
- New York University — New York, New York, United States
- Cincinnati Children's Hospital — Cincinnati, Ohio, United States
- Nationwide Children's Hospital — Columbus, Ohio, United States
- Wills Eye Institute — Philadelphia, Pennsylvania, United States
- Baylor College of Medicine/Texas Children's Hospital — Houston, Texas, United States
Full record on ClinicalTrials.gov
Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.