Parents of Pediatric Solid Organ Transplant Recipients: Transition to Home and Chronic Illness Care

Completed

Conditions studied: Transplant

In brief

The overall long term objective of this research is to improve health care utilization and quality of life of pediatric solid organ transplant recipients and family. Understanding the process of transition to a chronic medical condition during the acute (3 weeks after transplant) and long term (3 and 6 months) will significantly guide the development of clinical interventions aimed at maximizing adherence and family psychosocial adjustment.

Key facts

Study ID

NCT01389804

Run by

Medical College of Wisconsin

People needed

51

Starts

2010-07-01

Expected to finish

2012-01-01

Last updated by the study team

2012-04-23

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• the parent's child has undergone a heart, kidney, liver, lung or multivisceral transplant and is being discharged home from the hospital
• the parent is English speaking (tools being used have been validated for English participants only)
• the parent is 18 years of age or older

You may not qualify if…

• presence of significant communication or cognitive impairment on the part of the parent that would preclude completion of questionnaires based on self-report
• the child has already experienced the discharge to home transition after a previous transplant.

Where it is running

• Children's Memorial Hospital — Chicago, Illinois, United States
• St. Louis Children's Hospital — St Louis, Missouri, United States
• Children's Hospital and Medical Center of Nebraska — Omaha, Nebraska, United States
• Levine Children's Hospital — Charlotte, North Carolina, United States
• Children's Hospital of Wisconsin — Milwaukee, Wisconsin, United States

Full record on ClinicalTrials.gov

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