French Hypertrophic Cardiomyopathy Observatory

Recruiting now

Conditions studied: Hypertrophic Cardiomyopathy

In brief

Hypertrophic cardiomyopathy (Hypertrophic CardioMyopathy=HCM) remains a poorly understood disease with an assumption insufficiently codified. There is no data available in France on the profile of patients, diagnostic methods and assessment and therapeutic use. The purpose of this study is to establish a monitoring of patients with HCM (sarcomere of origin or not) in France (diagnosis, treatment)

Key facts

Study ID

NCT01091480

Run by

French Cardiology Society

People needed

600

Starts

2010-01-01

Expected to finish

2028-12-01

Last updated by the study team

2022-09-21

Who can join

Age: 15 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Age ≥ 15 years old
• Patient with HCM defined by an ultrasound thickness of the left ventricle ≥ 13 mm if familial or ≥ 15 mm if sporadic

You may not qualify if…

• Expressed refusal to participate in the study
• Significant aortic stenosis (<1 cm ²)

Where it is running

• European Georges Pompidou Hospital — Paris, France (enrolling)

Full record on ClinicalTrials.gov

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