Investigating the Needs of Childhood Cancer Survivors: The Unreported Experience

Completed

Conditions studied: Childhood Cancer

In brief

This feasibility study will determine the psychometric adequacy of a newly developed instrument - Childhood Cancer Survivor Study Needs Assessment Questionnaire (CCSS-NAQ). Additionally, the study will explore the feasibility of selected study methods -- sample selection, length of time to complete recruitment, and response rates - in order to inform a larger national periodic survey of adult survivors' health related needs

Key facts

Study ID

NCT01073735

Run by

St. Jude Children's Research Hospital

People needed

1178

Starts

2010-04-01

Expected to finish

2011-12-01

Last updated by the study team

2012-02-09

Who can join

Age: 25 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Living CCSS participant
• Age 25 years or older on December 31, 2009
• History of successful independent (non-surrogate) response to previous CCSS surveys (Flesch-Kincaid reading level for non-medical items established at 4th-6th grade).

You may not qualify if…

• Received treatment for pediatric malignancy at St. Jude Children's Research Hospital.

Where it is running

• St. Jude Children's Research Hospital — Memphis, Tennessee, United States

Full record on ClinicalTrials.gov

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