Patient-Reported Outcomes-Based Palliative and Hospice Care Practice: A Usability Study

Completed

Conditions studied: Advanced Cancers

In brief

The goal of this research study is to learn if palliative care patients or caregivers, and palliative care physicians or nurses can use a computer program designed to provide information about the symptoms and overall health of cancer patients.

Key facts

Study ID

NCT01024166

Run by

M.D. Anderson Cancer Center

People needed

18

Starts

2009-11-01

Expected to finish

2012-06-01

Last updated by the study team

2013-06-07

Who can join

Age: 21 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• All patient/caregiver participants will be adults 21 years of age or older.
• Participants will be palliative care cancer patients and/or their designated caregivers.
• Participating patients should be receiving palliative care at the MD Anderson Cancer Center as an inpatient or have attended at least one outpatient appointment; participating caregivers should have provided care to their patient during an inpatient stay or have attended at least one outpatient appointment with their patient.
• Physicians and nurses who are experts in palliative care will be eligible for study participation. For this study's purposes, a physician or nurse with a minimum of four years of experience working in a palliative care setting will be considered an expert in palliative care.

You may not qualify if…

• Patients or caregivers who are not able to report on symptom status using the electronic measurement system.
• Patient, caregivers, physicians, or nurses who do not agree to sign the study's informed consent documents.

Where it is running

• UT MD Anderson Cancer Center — Houston, Texas, United States

Full record on ClinicalTrials.gov

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