Alzheimer's Family Research

Completed

Conditions studied: Decision Making

In brief

This is a research study about how family members make research participation decisions for a relative with Alzheimer's or a related dementia. The purpose of this study is to learn more about how proxies (the family member who makes decisions for that relative), would think through decisions about whether to enroll their relative in studies for not-yet-approved medications for Alzheimer's Disease. The long-term goal of the study is to improve the way researchers inform families about clinical research studies and opportunities for participation. This study is being sponsored by the National Institute on Aging. Study participants will be interviewed by a research staff member about research enrollment decisions for their relative. A number of standardized questionnaires will be administered. There is only one visit required. The interview lasts about three hours. The investigators will try to make it as convenient as possible for your schedule. This is a non-intervention study. UCSF CHR # H58055-31168-02 v.1 Date: 012709

Key facts

Study ID

NCT00878059

Run by

University of California, San Francisco

People needed

165

Starts

2008-07-01

Expected to finish

2011-12-01

Last updated by the study team

2013-10-16

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• A family member-caregiver (the medical decision-maker) for someone with Alzheimer's Disease
• Able to be interviewed in person in or around the San Francisco Bay Area
• Able to read and understand English

You may not qualify if…

• People who do not meet inclusion criteria or who become uncooperative or unwilling to complete the interview

Where it is running

• UCSF Langley Porter Institute, or at participant's home — San Francisco, California, United States

Full record on ClinicalTrials.gov

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