Validation of the Sickle Cell Disease Pain Burden Interview

Completed

Conditions studied: Sickle Cell Disease, Pain

In brief

The purpose of this study is to validate a brief survey tool, the SCD Pain Burden Interview (SCPBI), which can be used in the clinical and/or research settings to assess the impact of pain on children with sickle cell disease.

Key facts

Study ID

NCT00804362

Run by

Connecticut Children's Medical Center

People needed

131

Starts

2008-12-01

Expected to finish

2012-12-01

Last updated by the study team

2013-07-30

Who can join

Age: 7 and older, up to 21. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Documented sickle cell disease
• 7 years old or greater
• Primary caregiver present at the first visit for children < 18 years of age

You may not qualify if…

• Primary language spoken other than English
• Patient is in acute pain episode at time of initial visit

Where it is running

• Connecticut Children's Medical Center — Hartford, Connecticut, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.