Congenital Heart Disease Research Registry

Stopped early

Conditions studied: Congenital Heart Disease

In brief

The Congenital Heart Disease Research Registry (CHDRR) is a program dedicated to understanding the etiology and improving the treatment of Congenital Heart Disease (CHD). This Registry will act as a central coordinating center for recruiting subjects with CHD and will provide infrastructure and guidelines for researchers studying the causes and treatment of CHD. Investigators working directly with the Registry will have access to biological, demographic and phenotype data from a significant pool of participants with CHD.

Key facts

Study ID

NCT00757510

Run by

Emory University

People needed

861

Starts

2008-01-01

Expected to finish

2010-02-01

Last updated by the study team

2014-12-09

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• All patients suspected or diagnosed with congenital heart disease receiving care at Children's Healthcare of Atlanta or Emory University Adult Congenital Heart Clinic and willing to sign informed consent.

You may not qualify if…

• Not referred or diagnosed with CHD
• No informed consent

Where it is running

• Children's Healthcare of Atlanta — Atlanta, Georgia, United States

Full record on ClinicalTrials.gov

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