Research Participants Perceptions of Their Experience in Clinical Studies

Completed

Conditions studied: Participant Satisfaction

In brief

This study will examine how research volunteers experience their participation in studies in order to develop surveys to be used by research centers trying to improve the experience of their participants. People 18 years of age and older who have participated in an NIH research protocol within the past 2 years as someone with a medical condition under study may be eligible for this study. Eight participants will participate in a moderator facilitated focus group in a discussion about being in research studies. An observer audiotapes the discussion and takes written notes. The focus group discussion lasts about 1 to 1 (Omega) hours.

Key facts

Study ID

NCT00729534

Run by

National Institutes of Health Clinical Center (CC)

People needed

14

Starts

2008-08-01

Expected to finish

2013-05-29

Last updated by the study team

2017-10-06

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may not qualify if…

• You will not be able to be in this study if you:
• Do not sign the informed consent form.
• Do not agree to honor the confidentiality of others in the focus group.
• Do not agree to be recorded on audiotape.

Where it is running

• National Institutes of Health Clinical Center, 9000 Rockville Pike — Bethesda, Maryland, United States

Full record on ClinicalTrials.gov

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