International Pediatric Adrenocortical Tumor Registry
Recruiting now
Conditions studied: Adrenocortical Tumor
In brief
This study aims to collect demographic and medical information including detailed family history of cancer of children and adolescents with adrenocortical tumors in order to learn more about the clinical and epidemiological aspects, treatment modalities, and outcome of patients with this rare disease, worldwide. In addition, investigators at St. Jude Children's Research Hospital (SJCRH) plan to perform molecular studies of tumor cells aimed to clarify the role of the TP53 gene and other genetic pathways in these tumors. They aim to obtain relevant biological material from participants with adrenocortical tumor (ACT), their biological parents, and relatives for determination of the TP53 germline status, molecular studies of the TP53 gene, and other molecular pathways.
Key facts
- Study ID
- NCT00700414
- Run by
- St. Jude Children's Research Hospital
- People needed
- 9999
- Starts
- 2001-10-01
- Expected to finish
- 2040-12-01
- Last updated by the study team
- 2026-05-22
Who can join
Age: any, up to 21. Sex: any. Healthy volunteers: not accepted.
Where it is running
- The Children's Medical Center — Dayton, Ohio, United States (enrolling)
- St. Jude Children's Research Hospital — Memphis, Tennessee, United States (enrolling)
- Stanford University — Stanford, California, United States
- All Children's Hospital/St. Petersburg Hospital — St. Petersburg, Florida, United States
- Cook Children's Medical Center — Fort Worth, Texas, United States
Full record on ClinicalTrials.gov
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