The Experience of Caregivers of Children With Down Syndrome

Completed

Conditions studied: Down Syndrome

In brief

This study will explore how caregivers adjust to having a child with Down syndrome. Primary caregivers 18 years of age and older of a child with Down syndrome may be eligible for this study. Participants complete a 20- to 30-minute survey that explores the subject s thoughts and feelings about being a caregiver to a child with Down syndrome. Questions explore the impact on the subject of being a caregiver for a child with Down syndrome, the subject s uncertainties related to the child s condition and goals for the child related to social skills, behavior, learning and education, physical and mental health, independence, and other goals. It also asks questions about the caregiver, the family and the child with Down syndrome. ...

Key facts

Study ID
NCT00695695
Run by
National Human Genome Research Institute (NHGRI)
People needed
546
Starts
2008-05-14
Expected to finish
2014-02-03
Last updated by the study team
2019-12-17

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may not qualify if…

Where it is running

Full record on ClinicalTrials.gov

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