Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

Running, not enrolling

Conditions studied: Retinoblastoma

In brief

The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.

Key facts

Study ID

NCT00639301

Run by

Memorial Sloan Kettering Cancer Center

People needed

473

Starts

2008-03-11

Expected to finish

2027-03-01

Last updated by the study team

2026-02-02

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patient diagnosed with retinoblastoma at any age
• At least five years from completion of all retinoblastoma-directed therapy
• Able to provide informed consent and/or assent, if indicated

Where it is running

• Memorial Sloan Kettering Cancer Center — New York, New York, United States

Full record on ClinicalTrials.gov

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