Research on the Environment and Children's Health: Retinoblastoma

Completed

Conditions studied: Retinoblastoma

In brief

The purpose of the research study is to learn more about the causes of retinoblastoma and to identify possible risk factors in the parents of patients with retinoblastoma. This kind of study is called an epidemiology study and is often done by interviewing people with and without the disease. In the case of a childhood disease, the researchers ask about experiences of the parents and children before the disease developed.

Key facts

Study ID

NCT00582049

Run by

Memorial Sloan Kettering Cancer Center

People needed

78

Starts

2003-08-01

Expected to finish

2008-06-01

Last updated by the study team

2008-07-04

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Cases will be children with sporadic heritable RBL, i.e., bilateral RBL without a family history of the disorder.
• Cases will be diagnosed with retinoblastoma in an approximately 7-year period, beginning January 1, 1998 and continuing until the sample size is reached.
• The case family must reside in the continental U.S., Alaska, or Canada.
• The case family must have a telephone in the household.
• The patient's physician must give permission to contact the parents of the case.
• The biologic father or mother of the case must be available and consent to be interviewed.
• The father or mother must speak English or Spanish.
• Genetic counseling regarding RB1 gene mutation analysis must be done prior to registration onto study.

You may not qualify if…

• Cases that do not meet the above criteria will be ineligible to participate and excluded from the study.

Where it is running

• Memorial Sloan-Kettering Cancer Center — New York, New York, United States

Full record on ClinicalTrials.gov

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