Qualitative Research on Women With Congenital Adrenal Hyperplasia

Completed

Conditions studied: Congenital Adrenal Hyperplasia

In brief

This qualitative interview-based study will investigate the impact that living with congenital adrenal hyperplasia has for women in the following areas: health-related quality of life (HRQL), psychological health, and health-seeking behaviors.

Key facts

Study ID

NCT00559078

Run by

Lehigh University

People needed

16

Starts

2007-07-01

Expected to finish

2009-05-01

Last updated by the study team

2009-11-09

Who can join

Age: 25 and older, up to 55. Sex: female. Healthy volunteers: accepted.

You may qualify if…

• 46XX, Females
• Diagnosed by a physician with CAH (either simple-virilizing or salt-losing types)
• Willing to complete a brief demographic questionnaire and participate in an hour long telephone interview

You may not qualify if…

• Non-classical or late-onset CAH

Where it is running

• Lehigh University — Bethlehem, Pennsylvania, United States

Full record on ClinicalTrials.gov

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