Pennsylvania Idiopathic Pulmonary Fibrosis Research Registry

Completed

Conditions studied: Idiopathic Pulmonary Fibrosis

In brief

The Pennsylvania Idiopathic Pulmonary Fibrosis State-wide Research Registry (PA-IPF) is a cooperative project between five medical centers to coordinate a team of investigators. The aim of this registry will be: 1) To assess the extent of lung fibrosis in the commonwealth of Pennsylvania 2) To provide better access of patients with pulmonary fibrosis in all regions of Pennsylvania to standard of care and diagnosis 3) To facilitate the translation of new therapeutic interventions from the bench to the bedside.

Key facts

Study ID

NCT00540475

Run by

University of Pittsburgh

People needed

2000

Starts

2007-09-01

Expected to finish

2018-07-01

Last updated by the study team

2018-10-11

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• IPF diagnosis
• Sufficient testing results completed for an IPF Diagnosis (screening script)
• Adults (age > 18 years old)
• Participants who read and comprehend English language

You may not qualify if…

• Children
• Prisoner-patients

Where it is running

• Milton S. Hershey Medical Center — Hershey, Pennsylvania, United States
• University of Pennsylvania Health System — Philadelphia, Pennsylvania, United States
• Temple University — Philadelphia, Pennsylvania, United States
• Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease — Pittsburgh, Pennsylvania, United States
• The Center for Health Research at Giesinger Health System — Wilkes-Barre, Pennsylvania, United States

Full record on ClinicalTrials.gov

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