Establishing a Repository of Blood and DNA Samples From People With Sickle Cell Disease (Comprehensive Sickle Cell Centers Collaborative Genotype-Phenotype Database and Sample Repository)

Stopped early

Conditions studied: Anemia, Sickle Cell

In brief

Sickle cell disease (SCD), also known as sickle cell anemia, is an inherited blood disease that can cause intense pain episodes. The purpose of this study is to collect, test, and archive blood and DNA samples from children and adults with SCD to study the role that genes play in SCD. Blood and DNA samples will be stored for use in future SCD studies.

Key facts

Study ID

NCT00528203

Run by

National Heart, Lung, and Blood Institute (NHLBI)

People needed

3640

Starts

2007-08-01

Expected to finish

2008-09-01

Last updated by the study team

2016-07-12

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Participating in the C-Data project

You may not qualify if…

• Unable to undergo blood collection

Where it is running

• Children's Hospital Oakland — Oakland, California, United States
• University of California, San Francisco — San Francisco, California, United States
• Brigham & Women's Hospital — Boston, Massachusetts, United States
• Children's Hospital of Boston — Boston, Massachusetts, United States
• Boston Medical Center — Boston, Massachusetts, United States
• Montefiore Medical Center — The Bronx, New York, United States
• University of North Carolina-Chapel Hill — Chapel Hill, North Carolina, United States
• Cincinnati Children's Hospital — Cincinnati, Ohio, United States
• Children's Hospital of Philadelphia — Philadelphia, Pennsylvania, United States
• St. Christopher's Hospital for Children — Philadelphia, Pennsylvania, United States
• Children's Medical Hospital of Dallas — Dallas, Texas, United States
• University of Texas Southwestern & Parkland — Dallas, Texas, United States
• University of Texas at Galveston — Galveston, Texas, United States

Full record on ClinicalTrials.gov

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