The Alpha-1 Foundation's and University of Florida's Alpha-1 Coded Testing (ACT) Study

Recruiting now

Conditions studied: Alpha-1 Antitrypsin Deficiency

In brief

The Alpha-1 Coded Testing (ACT) Study was established to study genetic testing and outcomes of individuals at risk for alpha-1 antitrypsin deficiency.

Key facts

Study ID

NCT00500123

Run by

University of Florida

People needed

50000

Starts

2001-01-01

Expected to finish

2050-01-01

Last updated by the study team

2025-11-24

Who can join

Age: any. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Individuals of any age at risk for alpha-1 antitrypsin deficiency on the basis of symptoms or family genetic risk.

You may not qualify if…

• Any person who has already had genotype and AAT level testing completed and has a qualified result.

Where it is running

• University of Florida — Gainesville, Florida, United States (enrolling)

Full record on ClinicalTrials.gov

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