Alpha-1 Foundation Research Registry

Completed

Conditions studied: Alpha 1-Antitrypsin Deficiency

In brief

The Alpha-1 Foundation Research Registry is a confidential database made up of individuals diagnosed with severe alpha-1 antitrypsin deficiency (Alpha-1) or the carrier state.

Key facts

Study ID

NCT00499941

Run by

Medical University of South Carolina

People needed

6655

Starts

2000-04-01

Expected to finish

2021-01-01

Last updated by the study team

2021-03-03

Who can join

Age: any. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Individuals of all ages who are diagnosed with severe alpha-1 antitrypsin deficiency or the carrier state

Where it is running

• Medical University of South Carolina. Division of Pulmonary and Critical Care Medicine — Charleston, South Carolina, United States

Full record on ClinicalTrials.gov

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