International SMA Patient Registry

Completed

Conditions studied: Muscular Atrophy, Spinal

In brief

This is a registry of individuals affected by Spinal Muscular Atrophy (SMA) and/or family members of individuals affected by SMA. The purpose of the registry is to allow researchers studying the biological basis of SMA and potential therapies in SMA access to individuals interested in participating in research and/or experimental therapies. The International SMA Patient Registry is supported by CureSMA.

Key facts

Study ID

NCT00466349

Run by

Indiana University

People needed

3000

Starts

1986-05-01

Expected to finish

2018-01-01

Last updated by the study team

2018-08-07

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Individuals or family members of individuals who have been diagnosed with SMA.

Where it is running

• Indiana University School of Medicine — Indianapolis, Indiana, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.