Palliative Care of Children With End-Stage Heart Failure

Stopped early

Conditions studied: Congenital Disorders

In brief

Palliative care in pediatric oncology and neurology is well described in the literature. There is a lack of information on the care of children terminally ill due to heart failure. A significant number of children are diagnosed with terminal heart failure for which palliative care is required. Objective: To describe palliative care of children over one year of age with end-stage heart failure, including need for and types of pain control, hospice use, need for and use of home nursing and quality of life issues.

Key facts

Study ID

NCT00327782

Run by

Children's Healthcare of Atlanta

Starts

1995-01-01

Expected to finish

2006-04-01

Last updated by the study team

2007-05-04

Who can join

Age: 1 and older, up to 18. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Any patient between 1 - 18 years of age (inclusive) Any patient with end stage heart disease Treated at Egleston Hospital, Children's Healthcare of Atlanta Followed by Sibley Heart Center Cardiology

You may not qualify if…

• Those who do not meet inclusion criteria

Where it is running

• Children's Healthcare of Atlanta — Atlanta, Georgia, United States

Full record on ClinicalTrials.gov

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