Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

Completed

Conditions studied: Amyotrophic Lateral Sclerosis

In brief

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

Key facts

Study ID

NCT00302198

Run by

Forbes Norris MDA/ALS Research Center

People needed

15000

Starts

2006-01-01

Expected to finish

2010-02-01

Last updated by the study team

2010-03-02

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.

Where it is running

• Forbes Norris MDA/ALS Center — San Francisco, California, United States

Full record on ClinicalTrials.gov

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