Hypertrophic Myopathy in Children

Stopped early

Conditions studied: Congenital Disorders

In brief

The purpose of this study is to identify the patients seen in our practice who are seen with Hypertrophic Myopathy diagnosis in order to better understand the presenting characteristics of their disease, the diagnostic testing to determine the diagnosis, the methods used to follow the disease progression and management practices used in caring for these patients. The objectives of this data review will be an analysis to determine if there is a methodology that will foster improved diagnostic speed and accuracy, and determine the best management practices based on outcomes in these patients.

Key facts

Study ID

NCT00267462

Run by

Children's Healthcare of Atlanta

People needed

75

Starts

1996-01-01

Last updated by the study team

2007-05-07

Who can join

Age: any, up to 21. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• seen at Sibley Heart Center, Children's Healthcare of Atlanta
• diagnosed with Hypertrophic Myopathy

You may not qualify if…

• those who do not meet inclusion criteria

Where it is running

• Children's Healthcare of Atlanta — Atlanta, Georgia, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.