Prospective Huntington At Risk Observational Study

Completed

Conditions studied: Huntington Disease

In brief

The purpose of this study is to define the natural history and experiences of people who are at risk for developing Huntington's disease but who do not know their genetic status.

Key facts

Study ID

NCT00052143

Run by

Huntington Study Group

People needed

1001

Starts

1999-07-09

Expected to finish

2009-12-17

Last updated by the study team

2024-09-03

Who can join

Age: 26 and older, up to 55. Sex: any. Healthy volunteers: accepted.

Where it is running

• University of Alabama — Birmingham, Alabama, United States
• Mayo Clinic Arizona — Phoenix, Arizona, United States
• University of California at San Diego — La Jolla, California, United States
• UCLA School of Medicine — Los Angeles, California, United States
• University of California, Davis — Sacramento, California, United States
• Colorado Neurological Institute — Englewood, Colorado, United States
• University of Connecticut — Hartford, Connecticut, United States
• Institute for Neurodegenerative Disorders — New Haven, Connecticut, United States
• University of Miami School of Medicine — Miami, Florida, United States
• University of South Florida — Tampa, Florida, United States
• Emory University — Atlanta, Georgia, United States
• Rush University Medical Center — Chicago, Illinois, United States
• Indiana University School of Medicine — Indianapolis, Indiana, United States
• University of Iowa — Iowa City, Iowa, United States
• University of Kansas Medical Center — Kansas City, Kansas, United States
• Hereditary Neurological Disease Center — Wichita, Kansas, United States
• Johns Hopkins University — Baltimore, Maryland, United States
• University of Maryland at Baltimore — Baltimore, Maryland, United States
• Boston University School of Medicine — Boston, Massachusetts, United States
• Massachusetts General Hospital — Boston, Massachusetts, United States
• University of Michigan — Ann Arbor, Michigan, United States
• Hennepin County Medical Center — Minneapolis, Minnesota, United States
• Washington University School of Medicine — St Louis, Missouri, United States
• UMDNJ Huntington Disease Service Center — Stratford, New Jersey, United States
• Albany Medical College — Albany, New York, United States

Full record on ClinicalTrials.gov

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