Establishment of a Database for Long-Term Monitoring of Patients With Nephropathic Cystinosis

Completed

Conditions studied: Cystinosis

In brief

OBJECTIVES: I. Establish a computerized databank to monitor the progress of patients with cystinosis treated with cysteamine. II. Track and monitor all patients including renal transplant, dialysis and post renal transplants.

Key facts

Study ID

NCT00004312

Run by

National Center for Research Resources (NCRR)

People needed

400

Starts

1999-10-01

Last updated by the study team

2005-06-24

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

Where it is running

• University of California San Diego School of Medicine — La Jolla, California, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.